Teri,
the Pope and Mom:
Exploring Humility and the Limits of Life

Parshat Tazriah/ Shabbat Hahodesh 5765
Each day in hospitals and homes around the world a drama takes place.
It’s a drama involving fundamental questions of life and death,
of love and its limits, of human knowledge and humility. It is a drama
that involves making the most difficult of decisions: fighting the inevitability
of death and knowing when to let go of life.
Most of the time we don’t hear about these
dramas unless we are personally involved in them. They take place in
the privacy of our homes or in quiet consultation in hospital rooms
or nursing homes. Occasionally they become a matter of public record
that grips our attention and forces us to struggle with our most basic
values and beliefs. When does life begin and when does it end? And whose
life is it anyway? Do we have a right to choose when and how we die?
Over the past few weeks we have witnessed two
such situations in which the limits of life and death were called into
question. One involved a young woman, the tragic victim of a heart attack,
who lay in a persistent vegetative state for years. The other involved
a beloved religious leader whose struggle with life came to a close
this past week. As different as these two cases are from one another,
I would suggest that they actually have much in common.
Both cases involved knowing when to let go. For
Teri Shaivo’s parents and her husband there was a fundamental
difference of opinion on this question. For Michael, the husband, Teri
would never have wanted to remain in such a degraded state of being
for so long. Removing the feeding tube was a matter of respecting her
wishes. For Teri’s parents this was not a question that we have
a right to decide. Life is not ours to give or take; we must do everything
in our power to err on the side of preserving life.
Unfortunately what should have remained a personal
family issue, devolved into a question of politics. Congress and the
President of the United States should never have entered into the fray
in debating this question. Rather than allowing Teri’s death to
become a source of healing and reconciliation, it only made the animosity
and anger between family members even worse. I can only imagine how
distressed Teri would have been to see the people she loved at odds
with one another over her life.
The death of Pope John Paul II was very different
from that of Teri Shaivo. After years of suffering with Parkinson’s
disease and multiple medical complications including a breathing tube
in his throat, the Pope made a heroic decision. While medical intervention
might have extended his life by months and even years, the Pope concluded
that he could no longer function fully nor serve the church and the
people he loved. And so he chose not to return to the hospital for more
medical interventions. The Pope died peacefully in his apartment surrounded
by thousands of adoring believers. His death brought Catholics together
rather than dividing them.
Following these two events over the last several
weeks has given me reason to pause and reflect as I sat at my mother’s
bedside in the hospital. About a month ago, I returned from the annual
Rabbinical Assembly convention to be at her side when she was diagnosed
with pneumonia. At almost ninety-one years old, even a small illness
(and this was not a little illness) could be life threatening. Mom recovered
from the pneumonia only to be hospitalized again from the after-affects
of the antibiotics. Sometimes the cure is worse than the disease.
A week ago I thought I was going to loose mom.
I’m happy to say that she is doing a lot better today. But a week
ago, as the doctors struggled to control the bacterium that was ravaging
her frail body, I wondered where we would draw the line. I was terrified
of the decisions that my sister and I would have to make. How would
we know that we had done everything we could to help her maintain some
type of life? Is this how she would want to live? Is it a really a question
of what we want or is our life not ours at all but a gift that we must
preserve at all costs.
While it seems fairly clear in the case of Teri
Shaivo that it was time to allow this poor woman to die, I am often
struck by the fact that we are too quick as a society to give up on
life. “This is not what dad would want,” we say. In a society
that judges the worth of life based on productivity, there is a slippery
slope over the question of when we should allow “the inevitable”
to take its course or if we should intercede in allowing death a quicker
and more painless resolution.
That’s why the Pope’s example was
so powerful. For years now the world has watched in awe as the Pope
has struggled with disease. His pain became a deeply religious metaphor
for Christians. John Paul taught the world that suffering is a part
of life, to be born openly and freely. In the face of such suffering
there is something to be accomplished. But at the same time Pope Jon
Paul recognized the limitations of life, and was willing to welcome
death when the time had come.
So I would like to end by sharing two pieces
of our tradition with you this morning. The first is a halachic ruling
or I should say a contemporary legal disagreement in Jewish law, and
the second is a story from the Talmud. And I will then leave it to you
to draw your own conclusions from them.
First you should know that there is no clear-cut
answer from the standpoint of Judaism in cases such as that of Teri
Shaivo. There isn’t. I know we would like there to be but there
isn’t. Our tradition acknowledges that every case is different
and must be debated on its own merits. The Committee on Jewish Law and
Standards of the Rabbinical Assembly has discussed this question at
length, and has issued several important Teshuvot, responsa, on the
question of what to do but they are not of one mind. It all comes down
to a question of how we characterize the terminal patient: Is he/she
a Terefah or Goses?
Let me explain. The word Terefah (besides its
context in the laws of Kashrut) means something that is torn, or someone
who is close to death. According to Rabbi Elliot Dorff, when the patient
has an irreversible, terminal illness, medications and other forms of
therapy may be withheld or withdrawn. Rabbi Dorff would consider artificial
nutrition and hydration a sub-category of medication in such circumstances,
and he would argue that they may be withheld or withdrawn. This would
include a person in a persistent vegetative state.
Rabbi Avi Reisner would respectfully disagree
with Rabbi Dorff. He would argue that a person in a persistent vegetative
state is a goses, a person literally on the edge between life of death.
While a person has a right to choose between treatment options, Rabbi
Reisner would argue that we should not remove medication, hydration
and nutrition from a person so long as it is beneficial for the prolongation
of life. It is only when we are not maintaining life but mechanically
holding off death that such impediments may be removed.
That is the theory involved in this question.
Obviously I’m overly simplifying a complex legal issue. The implications
are two fold. The question of removing life sustaining therapies is
not black and white, and it is all the more important to know our own
hearts on this question and second, it is important to have someone
we trust assigned as our health care proxy in case we can’t make
decisions for our selves.
Having said this, I want to end with a story
from the Talmud. Rabbi Judah the Prince was the editor of the Mishnah
and the leader of world Jewry in the Second Century. He suffered terribly
toward the end of his life. The Talmud says that as he approached death
the sages decreed a fast and prayed to keep him from dying. Remember,
that for the sages prayer was their version of life support. The Talmud
says, that a female servant of the great rabbi, having witnessed his
suffering, went up on the roof of his home and threw a large pitcher
down. When it crashed, the sages all stopped praying for a brief moment
to see what had happened – and in that moment Rabbi Judah passed
away!
For centuries the sages have debated this case.
What exactly did the servant do? Was she right to act in this fashion?
Is this the same as pulling the plug or active euthanasia? Or is it
a matter of allowing nature to take its own course?
I leave it up to you to decide what the servant’s
actions meant. What this story suggests to me is that there are natural
limits to life that we all recognize. And at some point when we maintain
life at all costs, we are guilty of hubris, of arrogance; in thinking
we have a right to subvert God’s decree. Life is not ours. It
is a gift from God, and we must know when it is time to let go of it.
But when do we reach that point? And who has
a right to decide? This is something that we will be arguing about for
years to come.
Shabbat Shalom